In the News – Identical Twins, but Only One Has Alopecia Universalis – Balding Blog

Snippet from the article:

As girls, they insisted on matching outfits, right down to the ribbons in their blonde pigtails. And as teenagers, identical twins Gwennan and Elin Thomas were inseparable, even going to the same university.

‘We were, and are, best friends,’ says Gwennan. ‘I had a freckle on my forehead as a baby – which disappeared – and that was how our parents told us apart. Looking at some childhood photos, we still argue about who is who.’ Yet, in 2002, a shocking, inexplicable event would mark the sisters apart.

That year, Gwennan, then 25, was diagnosed with alopecia, a condition that causes hair loss. She suffers from the most extreme form, alopecia universalis, and has lost all body hair, including her eyebrows and eyelashes. Ten years on, she can still remember the morning she woke to find clumps of hair on her pillow. ‘I burst into tears,’ she recalls. ‘My hair had been thinning for a while but then it started falling out in clumps pretty much overnight.’

Read the rest — One sister has alopecia and the other has a full head of hair

Identical twins… yet one has alopecia universalis and the other doesn’t. One of the leaders in alopecia research is Dr. Angela Christiano, and the rest of the article talks about how this case is causing her to rethink how this might occur in just one twin. Dr. Christiano said, “There may be something, for example reaction to stress, that causes the gene to express itself in one twin but not in the other.




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Hair Loss InformationGilbert’s Syndrome and Hair Loss – Hair Loss Information – Balding Blog

Hello, I was wondering if you could help me out in explaining my blood results.

I am a 20 years old male and it seems and i am experiencing hair loss. I have Gilbert’s syndrome and i was told that it may somehow benefit to hair loss but i am unsure how. I used to have low iron in my blood and i thought that it could be an issue however i have normal levels of iron in my blood now but im still losing hair.

My blood results showed that my testosterone levels are normal however my dht levels are 3 times above normal. I recently experienced some weight loss. Could it be that my liver condition adds to the dht increase? can the dht increase be temporary due to my weight loss? what can i possibly do to slow it down?

Thank you!

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I do not believe Gilbert’s syndrome (a liver condition) has any relation to genetic androgenic hair loss. The two are not related.

Gilbert’s syndrome is a hereditary condition that relates has to do with how your body metabolizes bilirubin. I am not sure how it may relate to your DHT levels or if that even has any factor in androgenic hair loss. I would recommend you consult with your doctor or an endocrinologist.

Hair Loss InformationBill Gates Criticizes That More Money is Spent on Balding Cures than Polio and Malaria Vaccines – Hair Loss Information – Balding Blog

Mr Rassman,

I have a question for you regarding Bill Gates. He’s always on TV talking about how there is less money being put into polio and malaria research than there is to balding cures. He criticizes this. I think more money should go to hair loss than polio and malaria combined. Hair loss causes so much grief and difficulty for men. I think he just doesn’t understand it and might change his tune if he were bald. What do you think?

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We wrote about Bill Gates’ quote years ago here.

I am in the business of hair restoration, and even I agree that polio and malaria treatments are more important than curing balding. Hair loss, while it causes grief and stress to men and women, is not a disease, but rather a heritable pattern of hair loss. It does not cause death like polio and malaria. Some may not agree with me, but hair loss is not a disease.

Keeping Your Hair Through Chemotherapy with the Cold Cap – Hair Loss Information – Balding Blog

A previous post from a few months back talked about a way to prevent hair loss when a patient is going through chemotherapy by using Cold Cap Therapy. Chemo is used for treating many types of cancer, and many of these treatments cause hair loss.

I am happy to report that the patient discussed in May has just finished her chemotherapy, and she sent this email to me with permission to post it on this site:

Wow – it is good to be looking at the end of the chemo cycle (six treatments in an outpatient facility). I am finally seeing my energy beginning to come back. This cycle had more general fatigue and much more muscle fatigue which is slowly waning. I am thinking that I should be 90% to my normal state by the weekend. I can report that my hair is holding – we sent back the cold-caps with a fond farewell.

Overall I’ve had about 20% hair loss over the therapy course and my hair is growing normally. I may have lost 20% (my estimate) of my original hair and the new hair is already growing back. I want to put the word out that if you know anyone who is looking at chemotherapy and wants to avoid hair loss that they should contact me [note: BaldingBlog will make the connection to this patient].

I have put together a guide to using cold-caps based on my experience which I think will be helpful. It is only hair but it makes a difference to know I look healthy and when I looked in the mirror through this period of chemo, having my hair kept my spirits up. Please tell others to contact me.

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If you’d like to contact her, send us a message via the Contact page and we’ll make sure the email gets to the right place.

Did Propecia Cause My Prostatitis? – Balding Blog

Hello there, IM very glad I came across your website its very interesting reading peoples questions. My question is ive been taking propecia now for 4 years started at 21, for the last 6 months I have been experiencing a lot of prostate pains especially after sexual intercourse and sitting down for long periods.

My urologist says its prostitus and as this is not one of the side effects listed believes its not playing a role, have you had any case of this with your patients. Im thinking of taking a lower dosage 0.5 seeing if it helps or even coming off propecia and trying regain. My hairloss is a gradual progress. Im also concerned im only 24 and have been taking a drug for 4 years maybe its time to come off.

I’ve answered a similar question before here.

You should ask your doctor regarding your treatment plan for your hair loss. I do agree with your urologist that prostatitis and Propecia are not related. There are many causes of prostatitis.




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I’ve Had Severe Hair Loss Ever Since I Had Typhoid Months Ago – Balding Blog

Hi Doc,

I am 34 yrs old and I suffered from typhoid in the months of march-april 2012 and since mid May I am experiencing severe hair loss. I never had issues of Dandruff or any other scalp related diseases. What are the chances of hair regrowth and how long with the hair fall continue? I am currently taking Xtraglo tablet at night and an Iron tablet in the morning.

Hair loss can arise from extreme stress and medical illness. It generally reverses and hairs do grow back provided that the patient did not accelerate the male pattern balding that he may have had from his genetics. It does take up to a full year at the least for the hair to return.




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In the News – Popular Herbal Remedy Birthwort Causes Cancer – Balding Blog

Snippet from the article:

A toxic ingredient in a popular herbal remedy is linked to more than half of all cases of urinary tract cancer in Taiwan where use of traditional medicine is widespread, said a US study Monday.

Aristolochic acid (AA) is a potent human carcinogen that is found naturally in Aristolochia plants, an ingredient common in botanical Asian remedies for aiding weight loss, easing joint pain and improving stomach ailments.

The ancient herb has been touted around the world for thousands of years for everything from gout to childbirth, but scientists now know it carries serious risks of causing kidney disease and urinary cancers.

Read the rest — Herbal remedy blamed for high cancer rate in Taiwan: study

I am posting this because in our search for natural herbs to protect ourselves from disease and to impact our known risks, many of us seek out traditional Chinese medicines. Sometimes the risk from using such herbs, as you can see here, are enormous.

The herb is commonly known as birthwort.




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Hair Loss InformationConnection Between Early Balding and the Risk of Parkinson’s Disease – Hair Loss Information – Balding Blog

The authors of a recently published article show that a specific genetic locus was identified on Chromosome 20, which is associated with Parkinson’s disease, that is also a susceptibility locus for early-onset genetic balding. The study was conducted in 12,806 individuals of European ancestry who had early-onset genetic balding. There was a high degree of confidence in the reported statistics.

The suggestion is that individuals with early onset genetic balding have a 6 fold increase in the risk for Parkinson’s Disease (7,664 cases of Parkinson’s Disease was studied). This data was published in Public Library of Science, and you can read it here.

With the advent of wide scale genetic testing, we are now finding relationships between the genes we carry and various diseases that run in family lines. I registered on 23andMe some time ago. When you register on this site, you send saliva samples along with the registration. From this, the company compares you with an expanding database of people and their genetic make-up. Risk of disease is sent to you and as new genetic testing is developed, you can see your ever-changing risks of various diseases. What this means is that, for example, you have a higher risk of heart disease than the average person, you can take steps early in your life to mitigate that risk. I would suggest that you may find it interesting to look at the 23andMe site.

In the News – Viruses that Kill Cancers – Hair Loss Information – Balding Blog

Snippet from the non-hair-loss article:

A laboratory-grown virus that can infect humans and evade the immune system might sound like it belongs on a bioterrorist’s must-have list, but in fact it’s what some cancer researchers have been waiting for. The viruses in question, including the one used by Melcher and colleagues, are adept at killing cancer cells but leave healthy tissue alone. “Often tumors get rid of genes to become immortal, and when they do that they actually become weak when it comes to viral infection,” explained John Bell, a specialist in Cancer Therapeutics at Ottawa Hospital Research Institute in Canada, who was not involved in the work.

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Read the rest at The Scientist — Cancer-Fighting Virus

This is a virus that can target tumors, and then destroys the cancerous cells. Amazing!

Discoveries like this article discloses are an exciting frontier in medical research and offers great promise for the future treatment of cancers that are often out of the reach of conventional therapy. As the article also points out, large trials are going to be needed and this is still early in the research.

Finasteride Has Helped, but I’m Still Depressed and Obsessed with My Hair – Hair Loss Information – Balding Blog

Hi doctor Rassman,

I’m a 30 year old man from Belgium. For about 2 years I am following your blog daily. Thanks for this blog, because it reduced my concerns dramatically!

To keep my story short, I have severe depression and anxiety since January 2009. A couple of months after the start of my disease in 2009, I lost my hair density with a more see through scalp as result. Since then I lost more than 100 hairs daily, which made my disease worse. I lost everything, including my wife.

Now 3.5 years later I still have good coverage and I still can style my hair in such a way that people think that I have zero hairloss. I am using proscar 1.25 mg for about a year now, and the hairs I am losing in the shower are much thicker than they used to be. However, I am still depressed and obsessed with my hair, I really don’t know what to do. Please help me doctor Rassman 🙁

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I visited your country about a year ago and love the place and its people.

You need to get a doctor to explore if this drug is impacting your state of mind (a potential very rare side effect). If I were your doctor, we would get to know each other… but I can not manage you from this distance. You need to get your depression under control, which may or may not be related to finasteride, since you said you had severe depression before starting the drug.